A public lecture by Bridging Fellow Dr Daniel P Jones has just been published by the European Society for the Study of Tics & Tourette Syndrome.
‘The role of performance art in Tourette Syndrome research’ explores how performance art can be used as a research method to reframe tourettic bodies as ‘human’ and ‘rhythmic’, in contrast to commonly used language such as ‘explosive’.
Tracing Daniel’s performance practice, the central takeaway is that language and assumptions we bring to Tourette Syndrome are never neutral, and that framings of Tourette Syndrome as chaotic and arhythmic are having a notable impact on clinical decision-making and the ethics of emerging treatment technologies. He highlights how the creative and medical humanities can offer a route towards inclusive approaches in the clinic.
